Research Coordination brings together information about aphasia research from across the collaboration and shares it in formats people can use. This helps members see what is underway, build on existing work, and show the difference the collaboration makes.
The group is led by Associate Professor Sarah Wallace (Australia), with the support of members across the collaboration.
What this group does:
- Collates research activity from the working groups, including publications, conference abstracts, grants, and project activity.
- Reports this activity to the Executive Committee and contributes to reports for funders.
- Shares research findings in accessible formats so they reach people with aphasia, their families, and clinicians. This includes the Aphasia Research Library (aphasialibrary.org), which publishes aphasia-friendly summaries of aphasia research.
- Leads and supports new efforts to coordinate and strengthen aphasia research internationally.
- Represents the collaboration at national and international events.
The Aphasia Research Library
People with aphasia are systematically excluded from research about their own condition. Plain language summaries exist, but they are unfindable, unstandardised, and inaccessible for people with communication disability.
The Aphasia Research Library is the first freely available, searchable, communication-accessible repository of research summaries in the world. It was co-created with more than 100 people with aphasia across 15 countries. Since launching in 2024, it has drawn more than 9,800 visits from 86 countries.
Summaries are customisable in both content and format. Readers choose how much detail they want, from a short version to the complete summary. They can also change how the page looks and sounds, including text size, line spacing, and the speed of the audio narration. Researchers can upload a summary of their own research.
Visit the library at aphasialibrary.org
