General resources
Abbreviated version of the 24-h NIH stroke scale comprising three variables (aphasia, neglect, arm weakness), with excellent prognostic accuracy regarding stroke outcome after three months.
Review on the operationalisation of the construct โcommunicationโ in aphasia research.
Questionnaire and survey resources
EYSENBACH, G., 2004, Improving the quality of web surveys: The Checklist for Reporting Results of Internet E-Surveys (CHERRIES).
On use of SURGE: Survey reporting guidelines (for web and non-web based surveys).
Patient-reported outcome measures
Patient-Reported Outcome Measurement Information System (PROMIS) by the US NIH: a self-reported outcome measure of Quality of Life in Neurological Disorders (Neuro-QoL)
Aphasia Impact Questionnaire (AIQ 21).
Aphasia-friendly materials
The pictographic images (โParticipicsโ) designed by The Aphasia Institute in Toronto to facilitate conversations will be available to download for free by researchers, therapists and clinicians.
Communicative Access Measures for stroke (CAMS) to evaluate communicative accessibility of an institution.
Publishing and Dissemination to various stakeholder groups
Disseminating healthcare information.
Disseminating recommendations or guidelines to clinical trialsโ participants.
Guide published by the European Commission explaining you how to use social media in Horizon 2020 projects.
NIDA Data Share web site (sponsored by the US NIH).
European Open Science Cloud (EOSC).
EOSC portal.
Online source for identifying possibly predatory scientific journals.
Research commissioning
In the UK: TIDE (Topic Identification, Development and Evaluation) group.
N of 1 and related intervention trial designs
Oxford Centre for Evidence Based Medicine. Levels of evidence.
CENT: CONSORT extension for reporting N-of-1 trials (CENT) 2015 Statement.
SCRIBE: The Single-Case Reporting Guideline In BEhavioural Interventions 2016 Statement.
Optimising the ingredients for evaluation of the effects of intervention..
Core Outcome Sets (COS)
The ROMA Core Outcome Set
Reporting and Research Governance Guidelines
How to review a clinical research paper
National Institute of Neurological Disorders and Stroke (NINDS) New and Early Stage Investigators
National Institute on Deafness and other Communication Disorders (NIDCD)
